Network Patient News and Events
Saturday 14th June 10:00 – 15:00
Registrations are now open for our Summer Patient Engagement Event taking place at The Kia Oval, London. This will be open till the end of May or when spaces run out, whichever comes sooner.
Please click on the main poster, scan the QR code or on this link to book on Medtribe. There is also a quick guide on how to book.
Quick How To Guide to booking for this event
Patient and Public Voice (PPV) is vital to our Network
Did you know that your hospital is part of the Lifelong Congenital Heart Disease Network? Our aim is to deliver specialist care closer to you.
We have Fetal/Paediatric and Adult PPV Representatives on our board who want to engage with patients, parents and carers to discuss issues and gather views. These views are then raised with our Board to be discussed to see how improvements to your service can be made.
Click on the image to see full poster and get in touch with any of the PPV Representatives via thecontact us option at the bottom of this page.
PPV-Led Virtual Drop In SessionS
Our Patient & Public Voice (PPV) Reps regularly host virtual sessions to gather your thoughts and experiences on various topics. Unfortunately, the planned session on the topic of Transition – Moving from children’s to adult services in September is being postponed and we hope to re-visit this on a later date.
However, if you have any comments to make on this topic, please email chdnetwork@gstt.nhs.uk marking the subject of the email ‘Comments on Transition’ and we will gather your views and pass onto the PPV Reps.
Here are some suggestions of what to share with us below:
Thinking about the transition from paediatrics to adult services, how would you rate your experience from 1-10? (1=bad, 10=great)
- Do you have any good examples to share?
- Can you comment on what challenges you may have faced?
- What could have been/be done better?
Hearts Together – Living With CHD
An annual event for young people and adults born with a heart condition to come together
Hosted by: Somerville Foundation
Dates: Saturday 07 June 2025
Venue: Crowne Plaza, Glasgow
Audience: Young people and adults with Adult Congenital Heart Disease (ACHD)
Cost: £19.95 (members – free to join)
For further details, email somerville.office@sfhearts.org.uk
Are you a young person (aged 14 – 18) with heart condition?
Are you interested in joining other young people with heart conditions on residential summer camp trip to Finland?
Please email info@chfed.org.uk for more details
Date of Departure: 15th July 2025
Destination: Finland
With: Children’s Heart Federation
Cost: 1000 Euros (approx.)
Parents do not need to accompany the young person. There will be charity leaders, activity leaders and nurses to support this organised trip.
Please get in touch with The Children’s Heart Federation if would like any further details.
