Network Patient News and Events
Patient and Public Voice (PPV) is vital to our Network
Did you know that your hospital is part of the Lifelong Congenital Heart Disease Network? Our aim is to deliver specialist care to a centre closer to you. This directly benefits you and your family as you may not need to travel as far as you currently may do for the same level of care.
We have Fetal/Paediatric and Adult PPV Representatives on our board who want to engage with patients, parents and carers to discuss issues and gather views. These views are then raised with our Board to be discussed to see how improvements to your service can be made. Board meetings take place on a quarterly basis and usually take place in January, April, July and October.
Click on the image to see full poster or get in touch with any of the PPV Representatives via their dedicated email address: LifelongCHDNetworkPPVBoardReps@gmail.com
Past Events
Patient Engagement and Support Event, Saturday 14 June 2026
We were delighted to welcome patients, families and healthcare professionals to our Summer Patient Engagement and Support Event at the iconic Kia Oval, London. It was a great day of connection, support and shared learning, bringing together people from across the network. Under the sunshine, attendees enjoyed three focused sessions exploring different aspects of living with CHD – making for an inspiring and meaningful day for all involved.